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Does Anyone Else suffer from Spinal Kyphosis? Options
FIONA752
#1 Posted : Saturday, February 27, 2010 7:54:53 PM Quote
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Hi everyone,
This is Spine pain lady trying to locate any fellow sufferers!
I was diagnosed on December 10th with Kyphosis and collapse at Thoracic
vertabral bodies T6 and T7 and T5.
I also have a large haemangioma at T3.
I also have a disc bulge at Cervical Spine C 5/6 level which is abutting the anterior surface
of my Spinal cord.
I have had the blood tests for Myeloma, because I am only 52 and this has been ruled out.
How I stand up at all after these M.R.I. Scan results amazes me!
I hurt my back opening a very large Victorian sash window in my kitchen in September and
coughing while turning over in bed due to a very nasty cold bug a couple of weeks later.
In October the pain really kicked in and I was prescribed Solpadol - 30 mgs Codeine and 500 mgs
paracetomol.
4 months down the road the pain is improving, but still there and I have managed to cut down the
painkillers to one twice a day.
I have read that Kyphosis of the Spine effects more women than men.
I do not have Osteoporosis. I had a Dexa scan to check this and it showed that I am at the low
end of "normal" for bone density so I am classed as Osteopaenic. (Hope I spelled that right)
I still cannot wear a bra as it is too painful on my Spine and instead have discovered "Sloggi"
Comfort tops.
I am waiting to be seen by a Spine Specialist at Exeter Hospital, but the wait is 9-11 weeks!
I am feeling very alone with this condition and so posted this to see if any others share this
condition with me?
As regards my R.A my bizarre remission since July 24th continues. I am still aware that I
have R.A , but am able to do tasks in the house that I could not have done before and walk
further when the weather allows without the "stiffness" which used to set in for the previous 15
or so years!
So just at present my main problem is my Spine!
All replies welcome,
FionaSmile
P.S has anyone else experienced an improvement in R.A symptoms when they have developed
another condition?



Calmwater22
#2 Posted : Sunday, February 28, 2010 2:09:56 PM Quote
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Hello Fiona

Want to say heres BIG HUG wont make pain go away but may just help you knowing they have found out why you had such awful pain i remember it all so well and how horrid it was for you.
sorry see you in such pain,i have found when other disceaes start up that yes RA does subside as if body knows what it can handle.
im glad it has for you long may that contiue.
not alot help but just to say thinkin of you.
lv melly
cuddly cats make my world seem so much more fun
jeanb
#3 Posted : Sunday, February 28, 2010 3:16:59 PM Quote
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Hi Fiona

I'm so sorry to hear you are having so many problems. I do know that Barbara has back problems due to bulging and popping discs and maybe she will be able to offer some help when she picks up on your post.

I'm afraid I can't help with this one, but want to send a cyber hug anyway.

Take care and love to you

Jeanxxxxx
dorat
#4 Posted : Sunday, February 28, 2010 4:31:18 PM Quote
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Hi Fiona,

Sorry to hear of all your back problems but I'm pleased for you that the RA is giving you some respite!
I hope you don't have to wait much longer to see the spine specialist .
Love and hugs, Doreen xx
barbara-o
#5 Posted : Sunday, February 28, 2010 4:36:52 PM Quote
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Hi Fiona,

Fear not my lovely lady you're not alone, I was born with a mild curvature to the spine. Well here it goes: my last MRI scan showed that I have a significant reduction at the L5/S1 and to a lesser extent of L4/5 and a prolapse of L5/S1 on the left. A central L2/3 disc prolapse which is quite large and tears of the annulus at L4/5. On most days I cannot walk very far, lets say around a supermarket is enough to see me back at home prostate on the floor and dosed up on Tramadol. I'm in pain everyday to the point that I now have to wear a morphine based patch called Buprenophine Transdermal. I suspect my back problems was caused by having walked for so long with painful and swollen feet. which has put the alignment of my back out. Life is certainly not a ball of fun at the moment Sad On the plus side, I have asked for a second opinion, and have now been referred to a neurosurgeon at the National Orthopedic Hospital as my RA consultant believes nothing can be done about my back and wanted to just give me an epidural.

As for the RA, it is not as bad as it once was, so the Humira I started at the end of January must have started to work. However, I'm still getting pains in my feet and hands but it's no where near as bad as it once was when I was not taking any meds for 6 months; because of problems with my liver which was caused by taking Sulp and MTX.

Hope your spine isn't giving you too much grief,

love,

Barbara
XXXXXX
MrsWoman
#6 Posted : Tuesday, March 02, 2010 6:19:06 PM Quote
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Dear Fiona

Great to hear you are still in a good place with your RA. So sorry to hear about your back problems.

Oddly enough I am reacint well to my drugs and my mild RA is overall good though I am still have stiffness. I too have chostochonritis and ostheopenia and I haved back problems. They say that not RA and a separate condition. However walking or standing starts off my hip and then my back goes rigid like an ironing board and I get a lot of stiffness and pain. Taking a break doesnt allieviate it much so I am usually forced to go home so shopping for clothes or going to an exhibition is a nightmare as I get progressively stiffer like the iron man out of wizard of oz. I have lifts in my shoes....
Confused
Debbie11
#7 Posted : Wednesday, March 03, 2010 1:20:35 AM Quote
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Hi Fiona, missed this post. I have just been diagnosed with scoliosis at C6/&/T1 and collapsed disc at l7/S!1 it isnt the same but a shock an painful. Hope the doc helps you.

Take acre

Deb x
lyn2
#8 Posted : Wednesday, March 03, 2010 9:37:26 AM Quote
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Hi Fiona

I'm sorry you're having a bad time with your back, it sounds horrible. I hope you get to see the neurosurgeon soon.

Mrs Woman - you have desdribed the feeling that I get - my back going rigid like an ironing board. It happens if I stand in one position for more than a few minutes. Overall though, my back problems are minor compared with others.

Lyn
Debbie11
#9 Posted : Wednesday, March 03, 2010 11:14:52 AM Quote
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Hi Fiona, I have a haemanginoma as well, from what I understand though, they tend to leave these alone unless absolutely necessary. I hope your wait to see spinal consultant goes quickly. Spinal probs are the pits, truly limiting!

Take care

Deb x
FIONA752
#10 Posted : Wednesday, March 03, 2010 8:21:50 PM Quote
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Dear Melly, Jean, Dorat, Barbara, MrsWoman, Deb and Lyn,
Thank you for the replies to my post about the Spine problems.
I see that I am certainly not the only one to experience some kind of back
problem on here!
Barbara, MrsWoman and Deb - you all seem to be suffering a lot too!
The thing I loath about the Spine pain, is the way it puts me off going outside,
especially in this cold weather! (It is really cold again down here in Plymouth.)
Yesterday, I made up my mind to go privately to see the Neurosurgeon in Exeter, as my N.H.S
appointment cannot guarantee that I will be seen by him and because it is now so long
since I first hurt my back in August - with no opinion from anyone, except the Consultant
Radiologist who looked at my M.R.I results at the Hospital.
However, I need my G.P to write to him with a referral for me and she is not in the surgery
untill Friday!
So instead I have arranged to go to the Hairdresser tomorrow, for a skin test and to discuss
getting my hair trimmed and coloured next Tuesday with her. I have told her about my back.
It has now been a year since I have been to the Hairdresser and my hair is down to my waist
again! Which is fine -I am lucky that it still grows fast, but I hate grey in it - which I get
towards the front! Also, just a bit shorter would be nice, but I do intend to keep much of the length
because it disguises the slight curve in the top of my Spine.
I have found too, that this Spine Kaphoses has made me lose confidence in my ability to do
simple things, like go to the hairdresser, Opticians, etc, because of the pain that sitting
in chairs that do not support my back can cause. (At home I have my memory foam "V"
pillow for the settee and a soft pillow for chairs - so I shall take the soft pillow with me!)
I am due to see my Rheumatologist on the 12th of March and I don't want him to see me
without a Hairdresser's Appointment for a year!
I think that it will help me with my self confidence, which has definately gone down since the
back problem!
Much love to all of you,
FionaSmile


Alison-CD
#11 Posted : Wednesday, March 03, 2010 9:14:16 PM Quote
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Hi Fiona,

I agree and found that agony in the hairdressers chair is always worth it!!! Razz

I can hardly believe that some of you ladies can still stand up with your poorly backs. I was lucky ((!!!)) enough to have surgery at Royal National Orthopaedic 29 yrs ago for problems with my spinal cord at L5 / S1. I've had a few bulging prolapses since, but no real problems for many years, although I am neurotically back aware. I really feel for all of you and your bravery in coping with your backs and RA.

wishing you relief from your pain
Alison xx
amanda_lewin
#12 Posted : Thursday, March 04, 2010 12:08:17 AM Quote
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I would like to echo Alison's lovely post; you're all marvellously courageous!
lyn2
#13 Posted : Friday, March 05, 2010 5:24:48 PM Quote
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Hi Fiona

I have to take my "backfriend" seat with me when I go to various places. It's getting really old now, and John keeps mending it, as they are really expensive to buy now. It was sitting on church pews that made my back much worse.

Enjoy your trip to the hairdresser's, wow fancy having hair to your waist!

Lyn
jeanb
#14 Posted : Friday, March 05, 2010 6:08:29 PM Quote
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Lyn - what's a "backfriend please? It sounds very interesting and useful.

Love Jeanxxxx
FIONA752
#15 Posted : Saturday, March 06, 2010 6:59:41 PM Quote
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Yes Lyn, PLEASE tell us what a "Backfriend" is - it sounds
fantastic! I want one if it works!
Warm wishes,
FionaHuh
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